Albinism Info
What Is Albinism?
Albinism reduces the amount of melanin pigmentation produced in the body and leaves the patient’s skin, hair, and eyes a paler color. All racial and ethnic groups are susceptible to albinism. Many believe people diagnosed with albinism have red or pink eyes. However, they can have a wide variety of colors. Unique Variations Foundation, located in Longview, TX, wants to help break the stereotypes about albinism and provide those with the condition the necessary information and resources to help them live everyday lives.
How to Live With Albinism?
After receiving an albinism diagnosis, there are certain steps to take before living your best life. The Unique Variations Foundation team is here to answer all of your questions so you can safely go outside with your friends and family. For example, while there is no cure for albinism, you can help treat the symptoms by attending regular eye doctor appointments and reducing direct sunlight exposure.
Necessary Precautions When Diagnosed With Albinism
You need to take necessary precautions to do simple things like going outside for a walk in the middle of the day because your skin can burn even on cloudy days. You also need to make sure your eyes are receiving proper care to maintain your vision. It is suggested you visit the eye doctor once a year. However, many with albinism have multiple appointments to maintain their vision. Below are some more daily precautions you will need to take:
- Sunglasses to help safeguard your eyes from the sun’s ultraviolet (UV) rays
- Unique clothing designed to block UV rays
- Gloves to protect your hands while driving and walking
- Sunscreen to prevent tanning and burning
- Pay attention to strobing light warnings on television shows
Unique Variations Foundation the Longview Albinism Community
Whether you have an individual diagnosed with albinism or have questions on how to better take care of yourself, Unique Variations Foundation can help.